Let’s Support Emma Rose Gramillo & Her Family

Support the gramillo family

Emma Rose Gramillo was born 8/26/2019 with an unexpected and rare heart disease, Dilated Cardiomyopathy. This is very rare in babies and some can be treated with medicine but there is no cure or repair surgery. Emma’s cardiomyopathy is severe, so she is having evaluations done for a heart transplant as her heart is not getting better. She was also born with DiGeorge Syndrome also known as 22q11.2 Deletion but this is not giving her any problems for the moment.

Update 10/18/19 : Emma was listed for a heart transplant.

You can get updates on Emma at her Emma’s Journey page on Facebook.

Emma has been at St. Louis Children’s Hospital for several weeks. This has put a financial burden on the Gramillo Family (Erica (okPORK office manager), Daniel and 7-year-old big brother, Noel) as they are out of state while Emma receives care in St. Louis. If you would like to send a donation to the family to help them pay for travel, food, hotel, and medical expenses, you can use the donation link below.